in Honor of NKH Remembrance Day 2020
Join The NKH Rememberance Day Walk-a-thon
November 7, 2020 11:00 am EST
Hosted by NKH Crusaders & Brodyn's Friends
Featuring Live Update from Dr. Van Hove, University of Colorado.
Walk in place as we shelter in place.
Turn steps into dollars for charity
Like many other organizations, we rely heavily on public events to raise money for NKH research. In light of our current global state, we decided to host a virtual "walk-a-thon" to raise funds for NKH research and awareness. Each Zoom the Room Team will host a Zoom meeting on their respective date. We will walk, ride, laugh, and enjoy the company of each other, from afar. We urge you to get involved in the first ever Zoom the Room and help us as we continue our fight to save the lives of hundreds of children around the world.
Entertainment and Special Guests
Dave Specht- Host/MC Improvmania
A Video Message from Dr. Katsuri Haldar, University of Notre Dame
Live Update from Dr. Johan Van Hove, University of Colorado
NKH Remembrance Day Virtual Walk
Enter to WIN Great Prizes, While Supporting NKH Research!
LIke and follow the NKH Raffles for Research Facebook Page for more information and to enter.
Frequently Asked Questions
A virtual walk via Zoom, to raise money for NKH research and build awareness about the rare genetic condition.
Nonketotic hyperglycinemia is a rare genetic condition affecting approximately 500 children and adults worldwide. It's considered an orphaned disease, which means all research funding is provided primarily by the families of those affected.
Zoom the Room proceeds will go directly to research for NKH, including gene therapy.
When you register you will be given the option to receive a special Zoom the Room T-shirt! You can wear this, or maybe dress in a quirky costume, or just whatever you choose to wear for the day! Zoom the Room is a come as you are event. We want it to be fun and stress free!
You will receive an email prior to the event. The email will have a zoom link in it. Click that link and use Zoom on your smart phone, tablet, or computer. You can choose to download the Zoom app or just use Zoom via your web browser. The email will also include detailed information on navigating Zoom, how to share your video feed, how to use the audio functions, and so on. There will be someone assigned to tech support during the walk.
Zoom the Room is for everyone! We encourage you to invite as many people as possible to register! You can register your whole family and use several devices to Zoom the Room, or you can all gather together wherever you are in your home. If your family is not under the same roof, simply share the Zoom link so they can participate too!
NO! You can participate in Zoom the Room by sitting on your couch, playing with your children, hanging out on your porch, however you wish! We do encourage activity, but we understand that some may not want to literally walk in place, or climb their stairs. No matter how you Zoom the Room you are welcome to join our event for some fun, light hearted entertainment!
You can share our event on social media, invite your friends and family to register. You can even donate directly to your team in support of this event as a sponsor!